Hope this finds everyone well and safe.
March 30, 2013
Had second hand surgery back on Feb. 14th. As near as I can tell, the carpal tunnel symptoms are pretty much gone. Still having lots of problems with arthritis in both hands, especially the thumbs. Gonna see about getting a second injection in the left hand and get an injection in the right since they apparently didn't do it during the surgery like I thought they were going to. Started college classes and, man, what a nightmare it's been! Got the same instructor for two of my three classes, who also happens to be my academic advisor, and she is making mistakes left and right in this course, making it much more difficult for me to get through the material. Have to do a lot of writing exercises for the third class so thank goodness I had the hand surgeries. Otherwise, I wouldn't be able to do all that writing. Just hope all that doesn't end up hurting my hands anyway. Sorry to be so pessimistic, but I just can't get over how bad the instructors are. I'm already considering the possibility of transferring to a different school if this keeps up. Don't want all their mistakes and poor teaching to jeopardize my learning experience not to mention my career plans.January 11, 2013
Had my hand surgery yesterday. Surgeon said everything went great. It was strange for me, though, not only because of my arm feeling like it wasn't even there but also because I was awake for the entire procedure! Yet, I found it very interesting and fascinating! The pain med prescribed for me makes me ohh soo drowsy so can't do too much around here. Tried to get the doctor to indicate I would need in-home care after the surgery so that voc. rehab would pay for it, and the doctor's nurse said she knew he would not do that. So, I'm left with no help here. In recovery, I was asked four different times if I had anyone to help me out at home and, when I replied that I didn't, each time that person looked at me as though they were wondering how I would EVER manage things by myself! I guess we'll find out. It would be good if I COULD figure out how to manage on my own since I have to do this again at some point for the other hand. Sure am feeling drowsy from all the pain medication, but I got to hang in there!
December 31, 2012
First of all, I want to wish everyone a very Happy New Year! I hope you all have exceptionally good things coming your way in this new year!
I finally have a surgery date for the first of the two carpal tunnel release surgeries to be done on my hands, which is January 10th. Honestly, I'm more worried about how I will get along with only one functioning hand after each surgery, even if the healing process isn't all that long, which may or may not be true in my case, being diabetic and all. Since I live alone, I don't have anyone readily at my disposal to help out should I need it. I have asked over and over about this to the doctors and nurses involved in my case, but they seem terribly unconcerned about it. Does anybody have any suggestions on how I can get them to realize I'll need help at home after each surgery? There are agencies in this area that do this kind of thing and, because the voc. rehab. I'm going through will pay for any services the doctor says is necessary, there's no reason why they shouldn't be able to hook me up with them.
There's still no word on the progress of my disability claim. It is now almost four years since I applied for it! You know, they've thrown parents in jail for being less neglectful of their dependents than this. And while we can't throw the federal government in jail, surely it needs to be held accountable in some way for this atrocious kind of behavior!
I am so very thankful for your friendship and the tremendous way in which we all support each other! For me, this web site takes social networking to a whole new level! May you all truly be blessed in 2013!
October 17, 2012
Update on my profile: The judge from my Medicaid hearing back in April did not rule in my favor and upheld the initial withdrawal of Medicaid by SRS. I had every intention of appealing the judge's decision but, after talking with a second lawyer about my case, I had to let the Medicaid go. Because of an existing family trust that still contained some land (thereby indicating I had a monetary resource available to me), that lawyer told me it would be in my best interests to let the Medicaid go and then sell off my portion of the land and use up the proceeds from the sale for living expenses until I ran out of that and then go back and apply for Medicaid again. So, that's what I did and am living off that now.
I have also been trying to get on disability. I applied for it back in January of 2009. After moving here to Kansas later that year, I figured I would have to start all over again with applying for disability. However, I was shocked to find out that I could just continue my original claim. So, I then got a disability lawyer here in Kansas. After going through two separate hearings, the judge at those hearings denied my claim. So now, my claim is on its second appeal and is being reviewed by an appeals council in Falls Church, VA. However, my disability lawyer has told me that, at this point, the chances of me winning my claim have dropped to only about 25%, but he has seen cases where the claim for disability was finally approved, even at this stage. So, I told him, since I had to sell my portion of the land and could live off that for a while, to go ahead with the second appeal.
He told me to contact the vocational rehabilitation program in this state to see if they could help me find some small, part-time job I could do. So, I started that process also. However, not only is voc rehab trying to push me for a FULL-time job but also, in order for me to complete their program, I have to go ahead and have the carpal tunnel surgeries done on both of my hands. My primary doctor is very worried that my hands are too far gone and that I will lose the use of both of them. She said, if a person waits too long to have the carpal tunnel release surgery done, that, despite the surgery, the tendons and ligaments in the hands will thicken and the person will not be able to flex and bend their hands and fingers anymore, rendering them totally useless. I'm just hoping I will manage to get these surgeries done in time. No dates for the surgeries have been scheduled yet. And I know that a full-time job is just NOT going to happen for me. I am too sick most days to be up to doing much of anything. I’m quite certain that, if they could see what I go through everyday, they would realize that, at best, I could only work part-time.
It’s hard to believe that I began my case for disability almost four years ago now. My sister-in-law told me that it took her brother ten years! TEN YEARS!! But, at least, he did eventually get it. Of course, all this may not matter. I really think that, regardless of which candidate gets elected as President, we're going to completely lose our social security system, and we'll never get back what we paid into it. Just wish I could still work full-time or at least had some alternate income..
April 5, 2012
Thought I'd put a quick note on here in case anyone was wondering where I've been. I had a hearing on April 3rd with my state's social and rehabilitation services to try and get my medical assistance back as they closed out my case. It's kind of a long story, but I had to show they improperly handled my case, which hopefully I did at my hearing this past week. I really need the medical assistance since I have chronic health conditions and am in need of several surgeries, which I cannot afford without the medical assistance. If you believe in prayer, I hope you will pray for me that the outcome of the hearing is better than I could have ever dreamed of. And thank you for thinking of me and praying for me.
Living in a small town in Kansas now. Still love to do karaoke. Have my wonderful dog, Scout, and my three cats, Bogart, Woody, and Mom, to keep me company. Sure am glad I found out about this web site so I can get online and join the karaoke fun whenever!
Also, I am not looking for love or anything like that here. I have too many health problems now to be concerned about that. But I still wanna make a lot of friends, and I can't think of a better way to do that than through music!!
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